Today I received a note from a pediatric cardiologist who reviewed our new daughter's file. His words were encouraging in that they provided hope that surgery and cardiac supervision could help her lead a normal life. It is gladness, in these circumstances, to breathe a sigh of relief and move forward leaving behind so many of the phantom worries we concoct in our minds. We know that we face weeks or even months of hospital stays, scary surgeries, and the possibility of complications. However, when one reads a report that indicates "it is manageable in the hands of an experienced surgical team at one of the national pediatric cardiac surgical centers," the burden of the heart is lifted and we look to the future with hope.
That being said, there is never a guarantee that any of us will live long healthy lives. A family with our agency just adopted a little girl this summer. The child had an uncorrected heart defect and went in for a catheterization on Monday. She coded during the procedure and the doctor had to perform CPR manually for 45 minutes. She was put on life support. She never regained consciousness and a CT yesterday showed her brain had been damaged beyond hope. She died yesterday. It is very sad for all of us. Her heart was not even the cause of her death. An artery was nicked during the cath procedure, and though it’s only about a 1% risk, it happened. Though this is the ultimate dread of any parent, and great cause of grief for all of us, it also gives us reason to hope.
We cannot live our lives fearing what may lie ahead based on our own understanding of circumstances. We see trouble all around us. Any number of things could occupy our thoughts and make us fear the future; many things we spend time worrying about and trying to fix, when in the end they have little impact on us at all.
But we have a hope in the Providence of God. He is in control. He knows our every need, and before any one of us came into being, he knew the number of our days. He cares for us. He cares for the little child who needs a loving family. Whether her life is to be long and lively, or short and complicated, He provides. This sweet child who left us yesterday knew the touch of a mother, the playful laugh of a daddy, and the fellowship of a sister before her days were over. What a loving God to let this little one experience such love in her last weeks! God cares. He provides what we need. Even if we don't understand what those needs are, He does. And He does it all with love. Yes, the little one's family grieves now, but they are filled with the loving memories of their little girl, and their hearts are full with the joy of knowing God entrusted the last days of her lives to them. What a privilege!
So even if our own little girls's heart has so many problems, we remain hopeful in knowing that she is in the Lord’s hand, no matter what. And we will face each day submitting to His will for her life. We are just there to provide whatever He wills for her, as He cares for her during her time on this earth. When we made this decision to adopt her, despite all her heart problems, the one question that I kept coming back to is "If she died soon after we got her, would it be worth it?" and the answer in my heart was "Yes."
I am still struck that right on the heels of our own decision to adopt her, this family suffered such sadness. But I can truly say, I understand how they can feel such joy in their grief. It IS worth it. And God cares. He provides.
Blessings to you all,
Petrie